Sunday, February 7, 2010

Here is the Latest on TAYLA

I have had quite a few of you ask me about Tayla. I thought that blogging might be the easiest.

We have seen a cardiologist. He is almost positive that she has a syndrome called POTS. What that means is that her heart is always beating very fast. He had her wear a HOLTER which monitors her heart for 24 hours and then we mailed it back. That happened last Thursday and the Doc said it can take up to 3 weeks to get the results. He had her do that so that he could rule out any other possibilities. Our hope is that is comes back normal and then we know for sure we are only dealing with the POTS and can treat it with beta blockers. We have another Doc who is an internist and he is going to put her on some pills that will help with the brain. He is suggesting that she has some post-viral symptoms in her brain that are not firing completely to the heart which in turn causes the heart to behave the way it is. We feel very confident in this process. I am horrible at relaying the medical terminology and getting it to all make sense, but I can tell you this: I know we are on the right track! Between the 2 Doc's we are currently working with, I know in time Tayla will be healthy!

In the meantime, Tayla is still struggling with headaches, dizziness, & fatigue. I think when your heart is beating up to 135 bpm ALL DAY LONG that it might cause your head to hurt. She is super sad that she can't participate in any sports at this time. We are hopeful that it won't be long until she is running again! Running is her absolute love and passion!

They say that everything happens for a reason and so I have contemplated what the purpose of this trial might be. Here is what I have come up with. Before Tayla ended up in this position, I don't think her heart was as humble and open to the teachings of the spirit. Due to this trial, she has really opened her heart up and appears to be more willing to know what the Lord has in store for her. This lead her to getting her Patriarchal blessing today and WOW, what a gift! I wonder if she would have been as receptive had she not had to put her own agenda aside and listen to the Lord.

For me, I have learned many lessons, but the one I feel the most passionate about is the following. Tayla's YW leaders fasted for her and they told Trever & I so that we could fast along with her. As I was fasting, I, of course was starving. I had a thought during one of those moments when I wanted to cave and it went something like this: Would you not give up anything in this world if you knew it would help your daughter? At that moment I was given strength beyond my own. If my fasting would in turn help my daughter, then I could do it & do it happily! I think I might have had a little micro understanding as to how much our Savior and Heavenly Father love us. I always knew that, but I understood it just a little bit more! I love that girl! She is amazing. She has gifts that I marvel at and at times I wonder, "How did I get the honor of having her come to me? She is a gift in our home!"


Rannie said...

Again...thanks so much for sharing your family life with us....I miss being with you! Survived another drive to Dr. Kris today....whew!

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